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A Parents' Guide to Pandas, Pans, and Related Neuroimmune Disorders

Autor Patricia Rice Doran, Christine Leininger Amabile, Diana Pohlman, Tiffany Tumminaro, Heather Rain Mazen Korbmacher
en Limba Engleză Paperback – 21 iun 2019
Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.
The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.
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Specificații

ISBN-13: 9781785927683
ISBN-10: 178592768X
Pagini: 160
Dimensiuni: 154 x 229 x 9 mm
Greutate: 0.34 kg
Editura: JESSICA KINGSLEY PUBLISHERS

Cuprins

Introduction. Part One: The Physical Realities of PANDAS, PANS and Related Conditions. 1. Your child has PANDAS or PANS - Now what? 2. What's happening in your child's brain: Medical Context of PANDAS/PANS. 3. Complex cases and comorbid conditions. 4. Common treatments and therapies for PANDAS/PANS. 5. Challenges in finding treatment for PANDAS/PANS. 6. Ensuring physical wellbeing: Nutrition and lifestyle support for PANDAS/PANS. 7. Managing relapse. Part Two: Living Well with PANDAS and PANS Symptoms. 8. Supporting mental well-being: Emotional and behavioral impact of PANDAS/PANS. 9. Managing Obsessive Compulsive Disorder (OCD) on a daily basis. 10. Managing separation and generalized anxiety. 11. Routines, supports and social skills. 12. Family self-care: Post-traumatic stress and support systems. Part Three: Planning, Advocacy and Communication. 13. Communicating and advocating effectively on behalf of your child. 14. Developing a strong educational plan for your child. 15. School supports, accommodations and adaptations. 16. Transitions, adolescence and adulthood with PANDAS/PANS. 17. Conclusion.

Descriere

Encephalitic autoimmune disorders, including PANDAS and PANS, cause children to display a wide range of symptoms including OCD, anxiety and tics. This helpful guide provides information for families on diagnosis and medical interventions, alongside practical strategies for support that families can carry out at home.