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Genetic Data and the Law: A Critical Perspective on Privacy Protection: Cambridge Bioethics and Law, cartea 16

Autor Mark Taylor
en Limba Engleză Hardback – 7 mar 2012
Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.
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Specificații

ISBN-13: 9781107007116
ISBN-10: 1107007119
Pagini: 246
Dimensiuni: 157 x 235 x 17 mm
Greutate: 0.52 kg
Editura: Cambridge University Press
Colecția Cambridge University Press
Seria Cambridge Bioethics and Law

Locul publicării:New York, United States

Cuprins

1. Introduction; 2. Privacy; 3. Genetic data; 4. The law; 5. Data in common; 6. Anonymity; 7. Human tissue; 8. Genetic discrimination; 9. Potential, promise and possibility.

Notă biografică


Descriere

Mark Taylor demonstrates how research using genetic data can be reconciled with proper privacy protection.