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Negotiating Risk

Autor Alison Shaw
en Limba Engleză Hardback – 31 dec 2008
Drawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a 'genetic diagnosis'. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated 'risk' of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural stereotypes. The book addresses questions about the relationship between genetic risk and clinical practice that will be relevant to health workers and policy makers. Alison Shaw is Senior Research Fellow at the Ethox Centre, University of Oxford, having taught at Brunel (1997-2004), London and Oxford Brookes universities. Her research interests include medical anthropology, ethnicity, kinship and social aspects of genetics. Her books include Kinship and Continuity: Pakistani families in Britain (Routledge 2000); A Pakistani Community in Britain (Blackwell 1888); andChanging Sex and Bending Gender (Berghahn 2005), edited with Shirley Ardener.
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Specificații

ISBN-13: 9781845455484
ISBN-10: 1845455487
Pagini: 320
Dimensiuni: 152 x 229 x 18 mm
Greutate: 0.56 kg
Ediția:New.
Editura: BERGHAHN BOOKS INC
Locul publicării:United Kingdom

Notă biografică

Alison Shaw is Senior Research Fellow at the Ethox Centre, University of Oxford, having taught at Brunel (1997-2004), London and Oxford Brookes universities. Her research interests include medical anthropology, ethnicity, kinship and social aspects of genetics. Her books include Kinship and Continuity: Pakistani families in Britain (Routledge 2000); A Pakistani Community in Britain (Blackwell 1888); and Changing Sex and Bending Gender (Berghahn 2005), edited with Shirley Ardener.

Cuprins

List of Figures Acknowledgements Introduction: Exploring genetic risk Chapter 1: Medical and public perceptions of consanguineous marriage and genetic risk Chapter 2: Close kin marriages: some anthropological theory and European history Chapter 3: British Pakistani cousin marriages: balancing marital risks Chapter 4: Medical surveillance and diagnostic uncertainty Chapter 5: Responding to reproductive risk Chapter 6: Foretelling and managing infant death Chapter 7: Genetic screening and the extended family Chapter 8: Genetic risk in context Bibliography Index

Recenzii

This is a thoughtful examination of important issues of risk, genetic information and the development of diaspora specific narratives. It is both systematic and engaging, which is not an easy thing to accomplish. Overall I think Shaw has made a remarkable contribution to a topic which is rife with words printed but sadly lacking in innovative approaches.A" * Stephen Lyon, Durham University - an excellent piece of work [that] addresses a very important debate at the intersection of clinical genetics, delivery of health services to ethnic minorities and anthropology * Bob Simpson, Durham University