Research Involving Participants with Cognitive Disability and Differences de M. Ariel Cascio

Research Involving Participants with Cognitive Disability and Differences: Ethics, Autonomy, Inclusion, and Innovation

M. Ariel Cascio

Eric Racine

Research participants who have cognitive disabilities and differences may be considered a vulnerable population. This volume provides multidisciplinary insights into the ethical aspects of research that includes these populations, including conditions such as intellectual disability, autism, mild cognitive impairment, and psychiatric diagnoses.

Citește tot Restrânge

Notă biografică

M. Ariel Cascio, PhD, is a postdoctoral researcher at the Pragmatic Health Ethics Research Unit of the Institut de recherches cliniques de Montréal with a Ph.D. in Anthropology from Case Western Reserve University. Cascio's research focuses on social and ethical issues related to autism, including developing guidelines for person-oriented autism research ethics through a collaborative project with autistic self-advocates, parents, researchers, professionals, and advocacy organization representatives.Eric Racine, PhD, is Director of the Pragmatic Health Ethics Research Unit and Full Research Professor at the Institut de recherches cliniques de Montréal (IRCM), Canada with joint appointments at the Université de Montréal and McGill University. Inspired by philosophical pragmatism, his research aims to understand and bring to the forefront the experience of ethically problematic situations encountered by patients and stakeholders in order to resolve them collaboratively through deliberative and evidenced-informed processes. He has published over 150 peer reviewed publications in leading journals in the social sciences (e.g., Social Science & Medicine; Public Understanding of Science), bioethics (e.g., Bioethics, American Journal of Bioethics), neuroscience (e.g., Pain, Neuron, Nature Reviews Neuroscience), and clinical medicine and neurology (e.g., Neurology, Lancet Neurology).