The Western Disease: Contesting Autism in the Somali Diaspora
Autor Claire Laurier Decoteauen Limba Engleză Hardback – 30 mai 2021
Following Somali parents as they struggle to make sense of their children's illness and advocate for alternative care, Decoteau unfolds how complex interacting factors of immigration, race, and class affect Somalis’ relationship to the disease. Somalis’ engagement with autism challenges the prevailing presumption among Western doctors that their approach to healing is universal. Decoteau argues that centering an analysis on autism within the Somali diaspora exposes how autism has been defined and institutionalized as a white, middle-class disorder, leading to health disparities based on race, class, age, and ability. The Western Disease asks us to consider the social causes of disease and the role environmental changes and structural inequalities play in health vulnerability.
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Specificații
ISBN-13: 9780226545752
ISBN-10: 022654575X
Pagini: 272
Ilustrații: 8 line drawings, 12 tables
Dimensiuni: 152 x 229 x 20 mm
Greutate: 0.54 kg
Ediția:First Edition
Editura: University of Chicago Press
Colecția University of Chicago Press
ISBN-10: 022654575X
Pagini: 272
Ilustrații: 8 line drawings, 12 tables
Dimensiuni: 152 x 229 x 20 mm
Greutate: 0.54 kg
Ediția:First Edition
Editura: University of Chicago Press
Colecția University of Chicago Press
Notă biografică
Claire Laurier Decoteau is associate professor of sociology at the University of Illinois at Chicago. She is the author of Ancestors and Antiretrovirals: The Biopolitics of HIV/AIDS in Post-Apartheid South Africa, also published by the University of Chicago Press.
Cuprins
List of Abbreviations
INTRODUCTION / The “Western Disease”
ONE / A Postcolonial Theory of Autism
TWO / Uneven Landscapes of Care
THREE / Approaching Autism Otherwise
FOUR / Political and Epistemic Mobilization
FIVE / Vaccine Skepticism and the Accumulation of Distrust
SIX / The Microbiome and Postcolonial Critique
CODA / Centering the Margins
Appendix on Methods
Acknowledgments
Notes
References
Index
INTRODUCTION / The “Western Disease”
ONE / A Postcolonial Theory of Autism
TWO / Uneven Landscapes of Care
THREE / Approaching Autism Otherwise
FOUR / Political and Epistemic Mobilization
FIVE / Vaccine Skepticism and the Accumulation of Distrust
SIX / The Microbiome and Postcolonial Critique
CODA / Centering the Margins
Appendix on Methods
Acknowledgments
Notes
References
Index
Recenzii
"In her exciting book, The Western Disease: Contesting Autism in the Somali Diaspora, Claire Decoteau advances postcolonial scholarship by setting forth a postcolonial theory of autism . . . It moves deftly between the analyst’s postcolonial lens and Somalis’ postcolonial theory of autism and thus is an important contribution to postcolonial theory."
"The story of autism has been told, up until now, mostly from the point of view of its white, middle-class, parents and self-advocates. The Western Disease switches the lens and offers its readers the opportunity to view autism from the margins, from deep inside the epistemic community built by Somali parents of children with autism living in Minneapolis and Toronto. It is a superb work of ethnography, faithfully attuned to the lived experiences of dislocation, marginalization, and struggle, which inform the parents' understanding of autism.”
“With deeply honed ethnographic insights and theoretical verve, Decoteau demonstrates that Somali refugees––due to their history, religion, and race-class status––have developed alternative understandings of autism. By immersing herself into these Somalis’ worldview, Decoteau exposes implicit race and class assumptions underlying the North American perspective on autism and autism therapies. Mandatory reading for understanding racial inequities in health care."
"A revelatory account of how racial inequality, medical discrimination, and migration converge to produce unique vulnerability to disease. Decoteau perceptively limns how Somali diasporic communities theorize and negotiate their acute, yet underrepresented, experience with autism. This is pathbreaking scholarship that deepens our understanding of the myriad ways social conditions shape illness.”
"Incorporating postcolonial perspectives and confronting Western assumptions are crucial challenges for contemporary health sociology and disability studies. The Western Disease is a fascinating read in these respects, skillfully contesting both biomedical and activist approaches towards autism in Western contexts."