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A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease

Autor Daniel Gibbs, Teresa H. Barker
en Limba Engleză Paperback – 15 mar 2023
Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs documents the effect his diagnosis has had on his life and explains his advocacy for improving early recognition of Alzheimer's. Weaving clinical knowledge from decades caring for dementia patients with his personal experience of the disease, this is an optimistic tale of one man's journey with early-stage Alzheimer's disease. Soon to be a documentary film on MTV/Paramount +.
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Specificații

ISBN-13: 9781009325189
ISBN-10: 1009325183
Pagini: 226
Dimensiuni: 130 x 198 x 14 mm
Greutate: 0.25 kg
Ediția:Revizuită
Editura: Cambridge University Press
Colecția Cambridge University Press
Locul publicării:Cambridge, United Kingdom

Cuprins

Acknowledgements; Introduction; Prologue; 1. Beacon Rock; 2. Forewarned and Forearmed; 3. The Smell of Baking Bread; 4. Sneak Preview; 5. A Stubborn Puzzle; 6. The Locked Box and the Family Tree; 7. The Measure of Memory; 8. Orcas, Nonetheless; 9. My Brain, My Self; 10. The Reveal; 11. Cognitive Reserve: Brain Cells in the Bank; 12. My Experimental Life; 13. When ARIA is More Than an Operatic Solo; 14. My Experiential Life: Living with Early-Stage Alzheimer's Disease; 15. Madeleines, Music and African Doves; 16. It's Only Scary if You Look Down; 17. Beyond DNA: Family History Reconsidered; 18. NEWS AT 5: Retired Neurologist Battles Alzheimer's; 19. The Forest, the Trees and the Ground Beneath My Feet; 20. What's in a Name? Alzheimer's Reimagined; 21. A Meaningful Outcome; Epilogue: The Writing Life; Epilogue: The Writing Life Act II; Appendix: The MIND Diet Basics; Resources; Index.

Notă biografică


Descriere

An engaging account of a neurologist's experience with an Alzheimer's diagnosis, a disease he spent decades treating in others.

Recenzii

'As a neurologist with early-stage Alzheimer's, Dr Daniel Gibbs offers a uniquely insightful, candid, and compassionate view from both seats. A Tattoo on My Brain is essential reading for any family living with an Alzheimer's diagnosis.' Lisa Genova, New York Times bestselling author of Still Alice and Remember: The Science of Memory and the Art of Forgetting
'The patient perspective in Alzheimer's is often sorely missing from international dialogue and debate about this demon disease. Dr Daniel Gibbs, whom I'm honored to call a friend in this journey, has connected the serpentine dots between the patient and the medical profession in his brilliant work, A Tattoo On My Brain. As a retired neurologist and now a patient, Dr Gibbs writes with great passion, knowledge and perseverance. His resolve reminds me of William Ernest Henley's poem Invictus: “My head is bloody, but unbowed.” A Tattoo On My Brain is a must read for the world.' Greg O'Brien, author of On Pluto: Inside the Mind of Alzheimer's
'When a neurologist experiences a so-called neurodegenerative condition such as Alzheimer's or Parkinson disease they are often equipped uniquely to provide insight into a condition that non-medically qualified patients may lack. In this unique work, A Tattoo on my Brain Dr Gibbs tracks in meticulous detail the earliest symptoms of what was diagnosed subsequently as Alzheimer's disease. This work will have major appeal to lay people, especially those caring for an affected family member but also to neurologists, neuropsychologists and those involved in trial of new medications.' Christopher H. Hawkes, Honorary Professor of Neurology, Barts School of Medicine and Dentistry, Honorary Consultant Neurologist, Barts Health, Author of Smell and Taste Disorders
'Dr. Gibbs provides a first-hand account of his journey as a neurologist living with early-stage Alzheimer's that is thoughtful, educational, humorous and poignant. I highly recommend this book to patients and families living with Alzheimer's, and to doctors and scientists dedicated to studying the disease and developing new therapies.' Gil Rabinovici, Professor of Neurology, University of California San Francisco
'A Tattoo on My Brain describes Dr. Daniel Gibbs' amazing journey from neurologist to patient living with Alzheimer's disease. Clues crop up along the way, a genetic marker for Alzheimer's, strange odors and memory glitches that tipped him off that his brain was starting to malfunction. He underwent advanced brain scans that showed the buildup of amyloid plaques and he joined a clinical trial to remove them. He vividly describes the side-effects that briefly turned his world upside down. But Dr. Gibbs emerges from this odyssey in good shape, with wisdom and reflection urging readers to learn about their risk for Alzheimer's disease and take steps to prevent it.' Stephen Salloway, Director of Neurology and the Memory and Aging Program, Butler Hospital, Providence, Rhode Island, and Martin M. Zucker Professor of Psychiatry and Human Behavior and Professor of Neurology, Warren Alpert Medical School of Brown University
'… profoundly moving … his memoir is a symbol of resistance that has muted the conversation about Alzheimer's among patient and doctors, family members and as a society.' Alex Merrick, The Bookbag
'Part memoir and part self-help guide, this book sees Gibbs reveal the importance of building your cognitive reserve with preventative measures early in life.' Natasha Harding, The Sun
'A Tattoo on My Brain is Dan Gibbs' personal account of living with a biomarker-defined diagnosis of Alzheimer's disease. Notably, he's a retired neurologist. The result is a story of two very distinct, even antagonistic, experiences. There's the intense, personal subjectivity of being a patient and the sharp objectivity of being a physician who has diagnosed and cared for persons with the same disease. In one book is one narrative of two perspectives embodied in one person. The result is a candid, unadorned and vivid self-dissection that reveals what it's like to lose one's mind just a little bit at a time. I'm routinely prescribing this book to my patients.' Jason Karlawish, author of The Problem with Alzheimer's
'… powerful, informative, and intensely personal story of a recently retired neurologist diagnosed with early-stage Alzheimer's disease … Readers are enabled to become Gibbs's companions on his path. Highly recommended.' L. R. Barley, Choice Connect