Aging Invisibly: Championing Diversity in Scholarship on Growing Older with Chronic Illness: Personal/Public Scholarship, cartea 13
Alexandra "Xan" C.H. Nowakowski, J.E. Sumerauen Limba Engleză Paperback – 19 sep 2024
These barriers to understanding diverse experiences of aging with chronic illness are endemic but not unique to quantitative research. Qualitative data collection can indeed offer richer insight into both of these intersecting sets of aging experiences. However, even more in-depth approaches to inquiry with smaller groups of people require asking questions that explicitly explore and affirm the diversity of identities and health statuses held by older adults. A more constructive and impactful approach to capturing meaningful data on diverse experiences of aging with chronic disease is thus to focus on affirming study architecture, rather than viewing one particular set of methods as a panacea for exclusion.
With this new edited volume, the editors support the broader goal of expanding knowledge on diverse trajectories of aging with chronic health conditions. Contributed chapters range from critical reviews to methods primers to empirical investigations. The authors focus synergistically on amplifying the attributes and experiences of diverse social populations and on highlighting journeys of longevity with chronic disease.
Contributors are: Nicholas B. DiCarlo, Angela Hunt, Ian M. Johnson, Nat Jones, Kristen D. Krause, Nik M. Lampe, Ginny Natale, Audria LB, Kirsten Ostergren Clark, Manacy Pai, Michele Wise Wright and Terry Gene Wright.
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Specificații
ISBN-13: 9789004708112
ISBN-10: 9004708111
Pagini: 218
Dimensiuni: 155 x 235 mm
Greutate: 0.34 kg
Editura: Brill
Colecția Brill
Seria Personal/Public Scholarship
ISBN-10: 9004708111
Pagini: 218
Dimensiuni: 155 x 235 mm
Greutate: 0.34 kg
Editura: Brill
Colecția Brill
Seria Personal/Public Scholarship
Notă biografică
Alexandra “Xan” C.H. Nowakowski, PhD (2013), MPH (2009), is Associate Professor of Geriatrics and Behavioral Sciences & Social Medicine at the Florida State University College of Medicine. They have published numerous journal articles, books, and public commentaries on the experience and management of chronic conditions as people age.
J.E. Sumerau, PhD (2012), is Associate Professor of Applied Sociology at the University of Tampa. They have published numerous journal articles, social fiction novels, short stories, and academic books on continuity and change in cultural meanings and settings over time.
J.E. Sumerau, PhD (2012), is Associate Professor of Applied Sociology at the University of Tampa. They have published numerous journal articles, social fiction novels, short stories, and academic books on continuity and change in cultural meanings and settings over time.
Cuprins
Acknowledgements
List of Illustrations
Notes on Contributors
Introduction
Alexandra “Xan” C.H. Nowakowski and J.E. Sumerau
1 “Spend Your Spoons Wisely”: Conceptualizations of Time, Energy, and Aging Invisibly with Crohn’s Disease
Ginny Natale and Manacy Pai
2 A Case Study of BIPOC Spouses with Rare and Genetic Diseases
Michele Wise Wright and Terry Gene Wright
3 Politicizing Therapy with Older Adults Experiencing Urological Distress
Ian M. Johnson and Nicholas B. Dicarlo
4 Gender Diverse Aging
Nat Jones
5 Resilience in the Face of Life Challenges Experienced by Older Adults Living with HIV
Kristen D. Krause
6 Embracing and Authentic Feminine Self
Angela Hunt (with Audria LB)
7 Fathers Who Have Adult Children with Developmental Disabilities Living in Their Home and Their Relationships with Them: A Qualitative Study
Kirsten L. Ostergren Clark
8 Life Course Eating Disorder Recovery on the Margins
Nik M. Lampe
9 Still Living, Still Dying: Autoethnographic Inquiry on Aging with Cystic Fibrosis
Alexandra “Xan” C.H. Nowakowski
List of Illustrations
Notes on Contributors
Introduction
Alexandra “Xan” C.H. Nowakowski and J.E. Sumerau
1 “Spend Your Spoons Wisely”: Conceptualizations of Time, Energy, and Aging Invisibly with Crohn’s Disease
Ginny Natale and Manacy Pai
2 A Case Study of BIPOC Spouses with Rare and Genetic Diseases
Michele Wise Wright and Terry Gene Wright
3 Politicizing Therapy with Older Adults Experiencing Urological Distress
Ian M. Johnson and Nicholas B. Dicarlo
4 Gender Diverse Aging
Nat Jones
5 Resilience in the Face of Life Challenges Experienced by Older Adults Living with HIV
Kristen D. Krause
6 Embracing and Authentic Feminine Self
Angela Hunt (with Audria LB)
7 Fathers Who Have Adult Children with Developmental Disabilities Living in Their Home and Their Relationships with Them: A Qualitative Study
Kirsten L. Ostergren Clark
8 Life Course Eating Disorder Recovery on the Margins
Nik M. Lampe
9 Still Living, Still Dying: Autoethnographic Inquiry on Aging with Cystic Fibrosis
Alexandra “Xan” C.H. Nowakowski