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Biobanks: Governance in Comparative Perspective

Editat de Herbert Gottweis, Alan Petersen
en Limba Engleză Paperback – 30 apr 2008
In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated.
Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores:
  • the interrelated conditions needed for a biobank to be created and to exist
  • the rise of the new bio-economy
  • the redefinition of citizenship accompanying national biobank developments
This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.
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Specificații

ISBN-13: 9780415427388
ISBN-10: 041542738X
Pagini: 248
Ilustrații: 1 line drawing
Dimensiuni: 156 x 234 x 15 mm
Greutate: 0.46 kg
Ediția:1
Editura: Taylor & Francis
Colecția Routledge
Locul publicării:Oxford, United Kingdom

Public țintă

Postgraduate and Undergraduate

Cuprins

Part 1: Conceptualising biobanks  1. Biobanks and governance: an introduction  2. Biobanks in action: new strategies in the governance of life  Part 2: How to build a biobank: comparing different approaches  3. The rise and fall of a biobank: the case of Iceland  4. Estonia: ups and downs of a biobank project  5. Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank  6. ‘This is not a national biobank…’: the politics of local biobanks in Germany  7. Governing DNA: prospects and problems in the proposed large United States population cohort  8. Governance by stealth: large-scale pharmacogenomics and biobanking in Japan  Part 3: Biobanks, publics, and citizenship  9. UK Biobank: bioethics as a technology of governance  10. Biobanks and the biopolitics of inclusion and representation  11. The informed consenters: governing biobanks in Scandinavia  12. Framing consent: the politics of ‘engagement’ in an Australian biobank project  13. Governing through biobanks: Research populations in Israel

Notă biografică

Herbert Gottweis is Professor in the Department of Political Science at the University of Vienna, Austria. 
Alan Petersen is Professor of Sociology, School of Political and Social Inquiry, Monash University, Melbourne, Australia. He is also an Honorary Visiting Professor at Plymouth University and at City University in London, UK.

Descriere

This groundbreaking book makes it clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics and the reshaping of current practices in governance.