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Living With The Genome: Ethical and Social Aspects of Human Genetics de A. Clarke

Living With The Genome: Ethical and Social Aspects of Human Genetics

Editat de A. Clarke, F. Ticehurst
en Limba Engleză Paperback – 29 aug 2006
This book brings us up to date with important contributions from the authoritative Encyclopedia of the Human Genome on the urgent social, legal and ethical aspects of the Human Genome enterprise, accessibly written and introduced for the undergraduate, postgraduate and general reader.
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Specificații

ISBN-13: 9781403936219
ISBN-10: 1403936218
Pagini: 354
Ilustrații: XXV, 327 p.
Dimensiuni: 152 x 229 x 18 mm
Greutate: 0.54 kg
Ediția:2006
Editura: Palgrave Macmillan UK
Colecția Palgrave Macmillan
Locul publicării:London, United Kingdom

Cuprins

Acknowledgements List of Contributors Glossary Introduction; A.Clarke PART 1: THE HUMAN GENOME PROJECT: GENETIC RESEARCH & COMMERCIALISATION Introduction; A.Clarke & F.Ticehurst Celera Genomics: The Race for the Human Genome Sequence; M.A.Fortun Human Genome Project as a Social Enterprise; P.L.Bereano Commercialization of Human Genetic Research; T.Caulfield Patenting of Genes: A Personal View; J.Rifkin Human Genome Diversity Project (HGDP): Impact on Indigenous Communities; J.Marks deCODE and Iceland: A Critique; E.Árnason & F.Wells Informed Consent in Human Genetic Research; P.R.Reilly Gene Therapy: Expectations and Results; P.A.Martin PART 2: GENETIC DISEASE: IMPLICATIONS FOR INDIVIDUALS, FAMILIES AND POPULATIONS Introduction; A.Clarke & F.Ticehurst Genetic Counseling: Psychological Issues; B.B.Biesecker Genetic Testing of Children; A.Procter Genetic Risk; L.Prior Genetic Susceptibility; C.Emslie & K.Hunt Thrifty Gene Hypothesis: Challenges; R.McDermott Carrier Screening for Inherited Hemoglobin Disorders in Cyprus and the United Kingdom; B.Modell Carrier Screening of Adolescents in Montreal; C.R.Scriver & J.J.Mitchell PART 3: DISABILITY, GENETICS & EUGENICS Introduction; A.Clarke & F.Ticehurst Nazi Movement and Eugenics; P.Weindling Eugenics: Contemporary Echoes; T.Duster China: The Maternal and Infant Health Care Law; S.Guo Disability, Human Rights and Contemporary Genetics; T.Shakespeare Mentally Handicapped in Britain: Sexuality and Procreation; J.McCarthy, V.Sinason & S.Hollins PART 4: GENETICS & SOCIETY: INFORMATION, INTERPRETATION AND REPRESENTATION Introduction; A.Clarke & F.Ticehurst Gene as a Cultural Icon; D.Nelkin Heredity: Lay Understanding; M.Richards Inheritance and Society; P.Atkinson, A.Bharadwaj & K.Featherstone Privacy and Genetic Information; V.English & A.Sommerville Insurance and Genetic Information; T.McGleenan 'Race', IQ and Genes; J.Beckwith & J.S.Alper Criminal Responsibility and Genetics; J.Bostock & G.Adshead PART 5: GENETICEXPLANATIONS: UNDERSTANDING ORIGINS AND OUTCOMES Introduction; A.Clarke & F.Ticehurst Genetics as Explanation: Limits to the Human Genome Project; I.Cohen & H.Atlan Darwin and the Idea of Natural Selection; G.Dover Sociobiology, Evolutionary Psychology, and Genetics; P.Bateson Creationism; M.Ruse Genetics, Reductionism and Autopoiesis; S.P.R.Rose Personal Identity: Genetics and Determinism; R.Chadwick Racism, Ethnicity, Biology and Society; H.Bradby PART 6: REPRODUCTION, CLONING AND THE FUTURE Introduction; A.Clarke & F.Ticehurst In Vitro Fertilization: Regulation; D.Morgan & M.Ford Reproductive Choice; J.Harris Feminist Perspectives on Human Genetics and Reproductive Technologies; D.Dickenson Sex Selection; D.Davis Dolly and Polly; A.Petersen Cloning of Animals in Genetic Research: Ethical and Religious Issues; A.Linzey & A.Barsam Distributive Justice and Genetics; C.Farelly Reprogenetics: Visions of the Future; R.Kollek Index

Recenzii

'This collection of economically written articles in an economically priced volume would be a useful addition to many social scientists' bookshelves, and an excellent text for an undergraduate course on the social aspects of contemporary genetic research.' - Alex Karner, Public Understanding of Science

Notă biografică

GWEN ADSHEAD Traumatic Stress Clinic, London, UKJOSEPH S. ALPER University of Massachusetts, Boston, USAEINAR ÁRNASON University of Iceland, Reykjavik, IcelandPAUL ATKINSON Cardiff University, UKHENRI ATLAN Hadassah University Hospital, Jerusalem, Israel and Ecole des Hautes Etudes en Sciences Sociales, Paris, FranceARA BARSAM University of Oxford, UKPATRICK BATESON University of Cambridge, UKJON BECKWITH University of Massachusetts, Boston, USAPHILIP L. BEREANO Department of Technical Communication, University of Washington, USAADITYA BHARADWAJ Cardiff University, UKBARBARA B. BIESECKER National Human Genome Research Institute, Maryland, USAJENNIFER BOSTOCK Kings College, London, UKHANNAH BRADBY University of Warwick, Coventry, UKTIMOTHY CAULFIELD University of Alberta, CanadaRUTH CHADWICK Lancaster University, UKIRUN COHEN The Weizmann Institute of Science, IsraelDENA DAVIS Cleveland State University, Ohio, USADONNA DICKENSON University of Birmingham, UKGABRIEL DOVER University of Leicester, UKTROY DUSTER New York University, USACAROL EMSLIE MRC Social & Public Health Sciences Unit, University of Glasgow, UKVERONICA ENGLISH British Medical Association, London, UKCOLIN FARELLY University of Manchester, UKKATIE FEATHERSTONE Cardiff University, UKMARY FORD Cardiff Law School, Cardiff University, UKMICHAEL A. FORTUN Department of Science & Technology Studies, Rensselaer Polytechnic Institute, USASUN-WEI GUO Medical College ofWisconsin, USAJOHN HARRIS University of Manchester, UKSHEILA HOLLINS St George's Hospital Medical School, London, UKKATE HUNT MRC Social & Public Health Sciences Unit, University of Glasgow, UKREGINE KOLLECK University of Hamburg, GermanyANDREW LINZEY University of Oxford, UKJOHNATHON MARKS University of North Carolina at Charlotte, USAPAUL A. MARTIN University of Nottingham, UKJANE MCCARTHY St George's Hospital Medical School, London, UKROBYN MCDERMOTT Queensland Health, AustraliaTONY MCGLEENAN School of Law, University of Ulster, UKJOHN J. MITCHELL McGill University, CanadaBERNADETTE MODELL University College London, UKDEREK MORGAN Cardiff Law School, Cardiff University, UKDOROTHY NELKIN Department of Sociology & School of Law, New York University, USAALAN PETERSON University of Plymouth, UKLINDSAY PRIOR Cardiff University, UKANNIE PROCTER Institute of Medical Genetics, Cardiff, UKPHILIP R. REILLY Interleukin Genetics Inc., USAMARTIN RICHARDS University of Cambridge, UKJEREMY RIFKIN The Foundation on Economic Trends, Washington, USASTEVEN P. R. ROSE The Open University, Milton Keynes, UKMICHAEL RUSE Florida State University, Tallahassee, USACHARLES R. SCRIVER McGill University, CanadaTOM SHAKESPEARE University of Newcastle Upon Tyne, UKVALERIE SINASON St George's Hospital Medical School, London, UKANN SOMMERVILLE British Medical Association, London, UKPAUL WEINDLING Oxford Brookes University, Oxford, UKFRANK WELLS Pha