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Making Their Days Happen: Paid Personal Assistance Services Supporting People with Disability Living in Their Homes and Communities

Autor Lisa I. Iezzoni
en Limba Engleză Paperback – 14 dec 2021
Most Americans—even those with significant disability—want to live in their homes and communities. Unpaid family members or friends often work as “informal” caregivers, helping those who need assistance— and many feel they have no option but to serve. In contrast, paid personal assistance services workers (PAS) provide a lifeline to those consumers with complex needs and limited social networks. However, there is a crisis looming in the increasing needs for paid PAS and the limited available PAS workforce.
Making Their Days Happen explores disability, health, and civil rights, along with relevant federal and state labor policies related to personal assistance services. Lisa Iezzoni addresses the legal context of paid PAS as well as financing mechanisms for obtaining home-based personal assistance. She also draws upon interviews she conducted with paid PAS consumers and PAS workers to explore PAS experiences and their perspectives about their work. 
Offering recommendations for improving future experiences of PAS consumers and providers, Iezzoni emphasizes that people with disabilities want to be a part of society, and PAS workers who do this low-wage work find satisfaction in helping them achieve their goals.
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Specificații

ISBN-13: 9781439920763
ISBN-10: 1439920761
Pagini: 284
Ilustrații: 14 tables, 1 fig., 9 halftones
Dimensiuni: 152 x 229 x 36 mm
Greutate: 0.48 kg
Editura: Temple University Press
Colecția Temple University Press

Notă biografică

Lisa I. Iezzoni, MD, MSc is a Professor of Medicine at the Harvard Medical School and based at the Health Policy Research Center-Mongan Institute at Massachusetts General Hospital. She is the author or editor of several books, including, When Walking Fails: Mobility Problems of Adults with Chronic Conditions.

Descriere

Through a compelling combination of policy analysis and humanizing detail of both consumers and providers of PAS, this book appeals to students, scholars, and patients of these services who are considering use of self-directed PAS alike.