Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability: Cambridge Studies in Philosophy and Public Policy
Editat de David Wasserman, Jerome Bickenbach, Robert Wachbroiten Limba Engleză Paperback – 8 mai 2005
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Specificații
ISBN-13: 9780521539715
ISBN-10: 0521539714
Pagini: 286
Dimensiuni: 152 x 228 x 23 mm
Greutate: 0.39 kg
Editura: Cambridge University Press
Colecția Cambridge University Press
Seria Cambridge Studies in Philosophy and Public Policy
Locul publicării:New York, United States
ISBN-10: 0521539714
Pagini: 286
Dimensiuni: 152 x 228 x 23 mm
Greutate: 0.39 kg
Editura: Cambridge University Press
Colecția Cambridge University Press
Seria Cambridge Studies in Philosophy and Public Policy
Locul publicării:New York, United States
Cuprins
Contributors; Acknowledgements; Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit; 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit; 2. Predicting genetic disability while commodifying health Anita Silvers; 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock; 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson; 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord; 6. Preventing the existence of people with disabilities Jeff McMahan; 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman; 8. The social context of individual choice Tom Shakespeare; 9. Disability and health systems assessment Jerome Bickenbach; Index.
Recenzii
'… what is most interesting about this volume is that while addressing the central issues in the debate about disability and well-being, it sets this in a wider context of getting to grips with deeper theoretical issues … In addition to addressing the particular topic at hand this collection makes a contribution more broadly to bioethics. The material on measuring health versus well-being, for example, has significant implications for the endeavors in population genetic databases that are currently being advocated.' Ruth Chadwick, Lancaster University
Descriere
Discusses the role of quality assessments in social policy, raised by prenatal testing for disability.