The Governance of Genetic Information: Who Decides?: Cambridge Law, Medicine and Ethics, cartea 9
Editat de Heather Widdows, Caroline Mullenen Limba Engleză Paperback – 4 dec 2013
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Specificații
ISBN-13: 9781107625426
ISBN-10: 1107625424
Pagini: 248
Dimensiuni: 152 x 229 x 13 mm
Greutate: 0.34 kg
Editura: Cambridge University Press
Colecția Cambridge University Press
Seria Cambridge Law, Medicine and Ethics
Locul publicării:New York, United States
ISBN-10: 1107625424
Pagini: 248
Dimensiuni: 152 x 229 x 13 mm
Greutate: 0.34 kg
Editura: Cambridge University Press
Colecția Cambridge University Press
Seria Cambridge Law, Medicine and Ethics
Locul publicării:New York, United States
Cuprins
Introduction Heather Widdows and Caroline Mullen; Section I. Problematising Governance of Genetic Information: 1. The medium and the message: tissue samples, genetic information and data protection legislation Neil C. Manson; 2. Me, myself, I: against narcissism in the governance of genetic information Søren Holm; 3. Decisions, consent and expectations of the individual Caroline Mullen; Section II. Ethical Frameworks of Governance: 4. Constructing communal models of governance: collectives of individuals or distinct ethical loci? Heather Widdows; 5. Rights, responsibility and stewardship: beyond consent Roger Brownsword; 6. Who decides what? Relational ethics, genetics and well-being Sarah Wilson; Section III. Redesigning Governance: 7. Involving publics in biobank governance: moving beyond existing approaches Kathryn G. Hunter and Graeme T. Laurie; 8. Genetic information and public opinion Andrew Edgar; 9. Harmonisation and standardisation in ethics and governance: Conceptual and practical challenges Ruth Chadwick and Heather Strange.
Descriere
This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information.