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The Multiple Sclerosis Manifesto: Action to Take, Principles to Live by de Julie Stachowiak

The Multiple Sclerosis Manifesto: Action to Take, Principles to Live by

Autor Julie Stachowiak
en Limba Engleză Paperback – 30 noi 2009

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IndieFab awards (2009)

An empowering guide for increasing your quality of life, navigating challenges, and embracing opportunities

Julie Stachowiak, PhD is the About.com Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depth understanding about the scientific developments around MS and the personal side of living with a chronic illness. In the "Multiple Sclerosis Manifesto, " Julie shows you how to create your own personal MS manifesto and provides practical tools and reassurance to help you Iget betterO in your life, from optimizing medical care and managing symptoms, to strengthening relationships, dealing with emotions, and embracing activism.

Committed to making the hard parts easier and the good parts last longer, Julie show you how to figure out what you need, identify opportunities, understand challenges, and get your needs met. With the "Multiple Sclerosis Manifesto," youIll know how to: Create your personal mission statement Protect yourself by learning more about medications you are currently taking or considering to take Determine what you want in a doctor and how to evaluate the doctor you have Celebrate your successesUand why itIs essential that you do Make disclosing your MS status to friends, family and others easier Find a support group "

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Specificații

ISBN-13: 9781932603446
ISBN-10: 1932603441
Pagini: 338
Dimensiuni: 151 x 228 x 30 mm
Greutate: 0.5 kg
Editura: Demos Health
Locul publicării:United States

Recenzii

"This a call-to-arms for those living with multiple sclerosis to take control of their lives and be empowered by someone living with MS...With a conversational but authoritative voice, this book is a positive joy to read..."—Library Journal

"Intelligent, empowering, and realistic are just some of the words that describe Julie Stachowiak’s book, Multiple Sclerosis Manifesto. A person living with MS, an epidemiologist, an advocate, and a writer for ms.about.com, Julie Stachowiak knows all too well the emotional and physical struggles MS can bring to daily life. Armed with many years of knowledge and firsthand expertise, Stachowiak has, in her book, put together a wonderful testament to coping with MS.


… honest, straightforward, and at times humorous, Stachowiak offers practical advice about the many obstacles one will inevitably encounter while living with a chronic illness…Chapters are easy to read, but it’s Stachowiak’s unique writing style, knowledge, and carefully thought-out presentation of the material that makes navigating through the pages simple and thoroughly enjoyable."—MSFocus


"…If you are newly diagnosed, a caregiver, or have had MS for many years, she covers a multitude of different topics regarding MS…Overall, I found this book to be informative and uplifting. It's a MUST read!"—Rocky Mountain MS Center


“I wish this book was around when I was first diagnosed with MS. It is straightforward, honest and practical. A must for anyone living with MS.”—Amelia Davis President of MS Friends, and author of My Story: A Photographic Essay On Life With Multiple Sclerosis


“The Multiple Sclerosis Manifesto is a significant resource for people living with MS. ...also demonstrates how people can address those issues individually and collectively to improve the world for themselves and others.”—David Chatel Executive Vice President of Advocacy, National Multiple Sclerosis Society


"With the Manifesto in hand, hold a mirror up to your MS-self and see clearly how to tactically push back against this insidious disease”—Jeffrey N. Gingold, author of Facing the Cognitive Challenges of Multiple Sclerosis and Mental Sharpening Stones: Manage the Cognitive Challenges of Multiple Sclerosis


"Issues are comprehensively addressed. Her academic credentials and status as someone with multiple sclerosis make her uniquely qualified to write about this complicated disease with expert knowledge and great sensitivity."—Caphis Consumer Connection Newsletter of the Medical Library Association


"A newly diagnosed person who is shocked and feels fully unaware of what to expect will the book very valuable...sends a message of positivism and audacity."—MSCare (online)

Notă biografică

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Descriere

Winner of a 2009 Foreword Reviews Book of the Year Award

Written for all people with MS, regardless of the type, severity of symptoms, gender, age, or time since diagnosis, The Multiple Sclerosis Manifesto: Action to Take, Principles to Live By contains critical information organized under “action” statements and using examples of how this information can most effectively be used to help the readers. Author Julia Stachowiak, who was diagnosed with the disease in 2004, has crafted a road map that not only provides encouragement but also offers education and motivation for readers. In 12 chapters, Stachowiak covers every aspect of an activist MS life, from large concepts like gaining confidence, motivating others, and taking control to practical tools like constructing an MS identity, exploring complementary and alternative treatments, and learning about the rights and responsibilities that come with the condition. In the process, she offers readers with MS a chance to transform both the medical and healthcare industries and themselves.

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