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Embodied Narratives: Protecting Identity Interests through Ethical Governance of Bioinformation: Cambridge Bioethics and Law

Autor Emily Postan
en Limba Engleză Hardback – 13 iul 2022
Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.
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Specificații

ISBN-13: 9781108483742
ISBN-10: 1108483747
Pagini: 250
Dimensiuni: 158 x 235 x 23 mm
Greutate: 0.59 kg
Ediția:Nouă
Editura: Cambridge University Press
Colecția Cambridge University Press
Seria Cambridge Bioethics and Law

Locul publicării:Cambridge, United Kingdom

Cuprins

1. Attending to identity; 2. Mapping the landscape; 3. Narrative self-constitution; 4. Bioinformation in embodied identity narratives; 5. Encounters with bioinformation: three examples; 6. Locating identity interests; 7. Responsibilities for disclosure; 8. Protecting identity in practice.

Notă biografică


Descriere

Explains the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves.