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Sharing Linked Data for Health Research de Carolyn Adams

Sharing Linked Data for Health Research: Cambridge Bioethics and Law

Autor Carolyn Adams, Judy Allen, Felicity Flack
en Limba Engleză Paperback – 13 feb 2025
This book will benefit researchers and research institutions by explaining the regulatory environment for access to government held data for research. The book will also be valuable to government policy makers and decision-makers around the world by providing comparative examples of global best practice to guide reform.
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  Cambridge University Press – 13 feb 2025 20772 lei  3-5 săpt. +1564 lei  5-11 zile
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Specificații

ISBN-13: 9781108445368
ISBN-10: 1108445365
Pagini: 278
Dimensiuni: 152 x 229 x 15 mm
Greutate: 0.41 kg
Editura: Cambridge University Press
Seria Cambridge Bioethics and Law

Cuprins

Part I. Context for decision making; 1. Research using linked data; 2. Individual, collective, and public interests; 3. Social licence; Part II. Frameworks for decision making; 4. Human rights; 5. Research ethics; 6. Law; Part III. Practice and process of decision making; 7. Existing practice and processes; 8. Better practice and processes.

Recenzii

'This is a much-needed contribution to the international discussion of how to responsibly use linked data in health research. By covering theory and practice, ethics and law, Adams, Allen, and Flack offer more than just a well-researched academic volume: it is a playbook for researchers and regulators to optimize health data linkage to advance the public good.' Eric M. Meslin, Ph.D., FRSC, FCAHS President and CEO, Council of Canadian Academies
'I strongly recommend this excellent, comprehensive book. It's based on sound theoretical foundations and practical solutions with international relevance. It's a highly important, unique contribution to the literature and is relevant to professionals and students alike across the globe.' Kerina Jones, Professor of Population Data Science, Swansea University, Wales, UK
'This excellent monograph explains how linked personal data can be safely used to answer important health questions. Future decisions about data sharing, requiring legal authorisation as well as independent ethical review, should be timely, transparent and based on clear and consistent criteria.' John D. Mathews, Professorial Fellow, University of Melbourne

Notă biografică